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Baby Charlie Gard’s parents end legal fight: Read their full heartbreaking statement

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LONDON, July 24, 2017 (LifeSiteNews) – Baby Charlie Gard’s parents made a heartbreaking statement in court today as they announced they were ending their legal fight to give their 11-month-old a chance at life.

The statement included a stinging rebuke of London’s Great Ormond Street Hospital, which refused to allow Charlie’s transfer for experimental treatment.

“Had Charlie been given the treatment sooner he would have had the potential to be a normal, healthy little boy,” said the statement from Chris Gard and Connie Yates, read by Connie in court this morning.

They insisted, based on consultation with U.S. expert Dr. Michio Hirano, that Charlie had normal brain function in January and could have largely recovered. But, they say, the hospital wasted precious months fighting them in court while Charlie’s muscles deteriorated to the point that treatment was no longer possible.

“There is one simple reason for Charlie’s muscles deteriorating to the extent they are in now – TIME. A whole lot of wasted time,” they said.

“This is one of the hardest things that we will ever have to say and we are about to do the hardest thing that we’ll ever have to do which is to let our beautiful little Charlie go.”

Read the full court statement by baby Charlie Gard’s mother, Connie Yates:

The last 11 nearly 12 months have been the best, the worst and ultimately life changing months of our lives but Charlie is Charlie and we wouldn’t change him for the world. All our efforts have been for him.

This is one of the hardest things that we will ever have to say and we are about to do the hardest thing that we’ll ever have to do which is to let our beautiful little Charlie go.

Put simply, this is about a sweet, gorgeous, innocent little boy who was born with a rare disease, who had a real, genuine chance at life and a family who love him so very dearly and that’s why we fought so hard for him.

We are truly devastated to say that following the most recent MRI scan of Charlie’s muscles, as requested in the recent MDT meeting by Dr Hirano; as Charlie’s devoted and loving parents we have decided that it’s no longer in Charlie’s best interests to pursue treatment and we will let our son go and be with the angels.

The American and Italian team were still willing to treat Charlie after seeing both his recent brain MRI and EEG performed last week. He’s not brain dead (and never has been). He still responds to us, even now, but after reviewing the recent muscle MRI it was considered that Charlie’s muscles have deteriorated to the extent that it is largely irreversible and, were treatment to work, his quality of life would now not be one which we would want for our precious little boy. They both agreed that treatment should have been started sooner.

There is one simple reason for Charlie’s muscles deteriorating to the extent they are in now – TIME. A whole lot of wasted time. Had Charlie been given the treatment sooner he would have had the potential to be a normal, healthy little boy.

His muscles were in pretty good shape in January, although obviously weaker than a child of similar age, and his brain scan was that of a relatively normal child of his age. He may well have had some disabilities later on in life but his quality of life could have been improved greatly.

The reason that treatment was not commenced in January or April this year was that Charlie was found to have ‘irreversible brain damage’ and treatment was considered as ‘futile’. Dr Hirano and Dr Bertini, together with other internationally renowned paediatric neurologists have now reviewed Charlie’s MRI’s and EEG’s which were performed in January and April respectively and they have confirmed that these MRI’s and EEG’s showed NO actual evidence of irreversible brain damage.

Unfortunately Professor Hirano did not have access to the raw data and he based what he said in April on reports. We did not have access to these second opinions before the initial trial, hence why we are where we are today. Had we had the opportunity to have raw data of the MRIs and EEGs independently reviewed, we are convinced Charlie would be on treatment now and improving all the time.

TO READ FULL DETAILS:

SOURCE: lifenews.com

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